Our Hope

By sharing our story and our experiences with this birth injury we will hopefully educate people. Knowledge is power. Our hope is that you will read this blog, share it with your friends, and they will share with their friends. Then in some small way we have prevented other families from having to go through what we have.

Thursday, April 7, 2011

Almost There.....

Not much to report today.  Another day of therapy.  Today's therapy sessions were rough.  Jadon is just ready to be done with all of this I think.  I will be honest...me too.  It has been an exciting yet exhausting week.  There is a lot of stress for us right now related to restrictions and keeping him safe.  We have to keep him out of the brace and let him play like normal while still making sure he does not get into a situation where he falls on his arm, bears weight on his arm, or pushes his arm down below the level it has dropped as of now.  The stress of all of that added to the fact that Jadon is really not enjoying his therapy sessions is wearing on both Matt and I.  We are getting tired and just want to go home.  Don't get me wrong....Shriner's is wonderful, amazing, and has been so good to us....but it is not home.  It is not Ms. Karen (Jadon's therapist at home) who knows Jadon and how to get Jadon to do the work yet still have fun.  Those are the benefits of someone who works with your child week in and week out.

I feel like I can deal with everything else if I just get him back into his normal, familiar environment.  We all continue to struggle with the stretches.  He really, really does not like them.  I am praying that they get easier and he becomes more comfortable with them after a week or two goes by.  They have to be done and it is no fun for any of us when he cries and struggles during stretching time. 

I don't even have any pictures to show you today!  That is how worn down I am feeling!  Only two more session tomorrow.  Therapy tomorrow is at 9 and 11 in the morning.  After therapy we are going to eat lunch at Shriner's then go check out a children's museum called the Please Touch Museum.  We have been wanting to check it out.  A lot of other parents at the Ronald McDonald House have told us really great things about the museum.  We found out today that we can get free passes to the museum through the RMH!  Woohoo!  Bonus!  I will definitely take pictures when we are there to show you!  After we are done there we come back to pack and get ready to come home! 

Thanks again to everyone for all your love and support! 


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