Sorry I am so slow! We survived, and are home from our lastest trip to Philadelphia. Jadon saw Dr. Kozin on Friday morning. Dr. Kozin is very happy with his progress. Even pointed out to us that he is beginning to get some new functions we had not noticed. Elbow extension is beginning to emerge. Another function with is called pronation (rotating of lower arm so that palm is down) is also there. So exciting!
We expressed our concern to Dr. Kozin about how limp his wrist still is. Jadon is able to bring the wrist inward toward his body but we have not seen any outward/upward motion yet. Dr. Kozin will continue to watch that. He did not seem happy with the wrist function either. He wants Jadon to wear his "Superman" brace they made him last visit while he sleeps at night to stretch those muscles out to see if that helps. He says that the finger flexors are very strong and it will take a lot for the wrist function to overpower that function. We are remaining hopeful we will see improvement in that area.
The therapist measured him for a Benik splint to wear two different times a day for two hours at a time. This will bring the wrist up but still allow him to opportunity to try and use his hand. Perhaps even help him use his hand more. They are going to order it for us. It will go to Shriner's first where the therapist will fine tune it a little more and then she is going to mail it to us. I will take a picture of it when it arrives to share with you.
We go back in six months.