We went to the Cameron's Smile 2nd Annual Brachial Plexus Family Picnic on October 17th. The weather was a little chilly but not too bad. We got the opportunity to meet and talk to many other families with children just like Jadon. The youngest was four months old and the oldest was 14. It was nice to see children that were a little farther down the road than Jadon. The guest speaker was Mr. Kenneth Levine, a lawyer from Boston, Massachusetts. He had a lot of good information and advice.
I also got to see Anise again . She runs the website Cameron's Smile. Cameron is her son and she runs the St. Louis support group. I got her information from the therapists when we went to St. Louis Children's Hospital for the consult. I emailed her not long after that visit and she has been a HUGE support for me. Whenever I am frustrated, worried, or have questions about anything she has been there for me. We got the meet briefly in Philadelphia. Their consult with Dr. Kozin was the same day as Jadon's first post surgery follow up appointment.
Jadon got to see Mickey and Minnie Mouse also. He was not sure what to think about these huge mice. He just kept staring at them. We spent all afternoon at the picnic and had a really nice time. It is nice to spend some time with people that COMPLETELY understand what you are going through because they have lived it.
Jadon meeting Mickey Mouse.
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