Our Hope

By sharing our story and our experiences with this birth injury we will hopefully educate people. Knowledge is power. Our hope is that you will read this blog, share it with your friends, and they will share with their friends. Then in some small way we have prevented other families from having to go through what we have.

Thursday, September 10, 2009


We had dinner last night at the RMH with a family from the Champaign, Il area. They have a 4 year old that had the same injury as Jadon. He had nerve grafts when he was 13 months old in St. Louis and then in May of this year had a tendon transfer surgery by Dr. Kozin. This trip was a followup to that surgery. What I found very encouraging is, we would have never known this child had a bad arm. He has limited motion when he tries to bring his left hand towards his waist, but he has a very good range of motion. He did not seem to favor the arm at all. This was the fourth trip to Philly for his family, and they have driven each time.

Jadon was up at 2 am but we fed him and gave him his pain medicine and he went back to sleep. We cleaned up the room, packed the Jeep and headed out about 9:00 am. I won't go into why Jake rolled his window down, but it may have had to do with the eggplant casserole I had for dinner. We were in the worst part of Philly when 3 out of 4 windows on the Jeep went down, and then shortly after, only 2 of those would roll back up. After a couple hours of driving, Jake's window still refused to go up so we used a combination of the Garmin GPS and my phone to find and call a Jeep dealer that was close. That is where we are sitting now, enjoying the complimentary soda and watching "The Price Is Right". Not making any progress towards home though.

Jadon is eating, but he hasn't needed any pain medicine since 2 am. He sure is an attention getter. Two of the McDonalds employees felt sorry for him and brought him happymeal toys. A lady in the McDonalds parking lot had to stop and ask about him. Some people don't want to ask and I think they just assume we threw him down the stairs or something.

1 comment:

  1. You crack me up! Eggplant casserole indeed! I want to know if it was Kiana or Matt that wrote that! :)

    Glad he is doing well! He's such a good natured little guy, he'd be an attention-getter even without all the casts and bandages! Glad he's getting a little extra TLC after all he's been through, though!